And there the dreams goes...

..of the football quarter finals. What a game yesterday - I'm still completely exhausted, but happy that I didn't lose my voice for good. The after-the-disappointment-sausage didn't really cheer me up but nevertheless, there are much more important things in life. And so I'm focusing again on my health. For the first time in three years I managed to serve civil protection service. Before, I was alwas worried that I couldn't do the soft physical work, but this time I felt ready again. And it went pretty good. Other than that I reduced my prednisone dose to 10mg, which is half of what I used to take before Kalydeco. My next goal is 5mg but of course I need to be patient because as we all know, prednisone is to be reduced very slowly. Maybe someday I get rid of that poison at all...

In two weeks I'm off for holidays and I hope that the mediterranean climate in Italy will help further improve my health. But to be honest, I'm already happy if it stays as it is now. More than a month has passed since the last IV therapy and there's still no sign of coughing. This is quite unusual and I am pretty sure that this is due to Kalydeco. Of course I will continue observing the almost eerie quiet situation in my lungs and keep you updated here. Now go back to work! :-)